Two and a hald years since my last hospital stay (minus outpatient procedures).One year since diagnosis. So much to reflect on in the last year. Where do I start? Fifteen months ago, I walked into a JW Marriott lobby, preparing to check in, carrying confusion, pain, and decades of unanswered questions. I walked out carrying … Continue reading How One Woman Unlocked My Rare Disease Diagnosis In A JW Marriott