Bibbidi Bobbidi Bendy

Coming Soon!!

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Every diagnosis has a backstory. And never… I mean NEVER – is it ever simple, right?

So often our story starts long before any diagnosis ever arrives. Before the label, before the categorization, before the insurance approvals. Before acknowledgement, before acceptance. Before understanding.

Sometimes our journey begins in hospital hallways, bathroom floors, urgent care lobbies… at the foot of a mother’s bed with more questions than answers…

In late-night Google searches; in ER visits dismissed as “just anxiety”; in whispers of “something feels off,” even when labs say everything looks fine.

This month on Bibbidi Bobbidi Bendy, I’m launching something I’ve wanted to do for a long time:

A storytelling series featuring the people at the heart of the rare and undiagnosed disease community.

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💬 What’s This All About?

Each month, I’ll be sitting down with 1–2 patients (or parents, caregivers, family members) to share their journey. These will be real stories about real people navigating the medical system with unanswered questions. Everyone’s journey is different – but what’s common is our unrelenting hope to find answers.

We’re kicking it off with a story that so many of us know too well:

“A Parent’s Fight for Their Child.”

This two-part feature will spotlight two families who have fought tooth and nail to find answers, to be heard, and to ensure their child receives the care they deserve. You’ll hear about their highs and heartbreaks, the red flags that were missed, and the systems they’ve had to push through to get help.

Because for many families, the fight doesn’t end at diagnosis – sometimes, that’s where it begins.

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🔎 What to Expect Moving Forward

This blog will continue to hold space for all the pieces of my heart –

The poems.

The paintings.

The honest, messy, late-night thoughts from a body that’s always bending and rarely breaking.

But now, it will also grow into something more structured:

A monthly advocacy project where I’ll amplify voices from our community and highlight the resources that have truly helped patients and families on their diagnostic odyssey.

My monthly goals –

✅ A monthly themed story focus (this month: parent advocacy)

✅ 1–2 in-depth interviews

✅ Resources (support groups, financial aid, clinical trial info, educational tools, etc.)

✅ A shareable blog post you can pass along to someone in need of hope or validation 🫶

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❤️ Why This Matters

If you’re a parent fighting for your child – or a patient still waiting to be believed – I want you to know you’re not alone.

This space is for you.

To be seen.

To feel less alone.

To find your story reflected in someone else’s.

This space is for all of us – to connect with resources we may not have known existed!

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📣 Stay Tuned

My first interviews are happening next week, and I’m so honored these families have trusted me with their stories. Once the series goes live, I’ll be sharing both blog posts here and across social media (focusing on LinkedIn for the time being until I have the capacity to create a dedicated page on other platforms).

If you’d like to be notified when new stories are posted, you can subscribe (and I’d be so incredibly honored! Click the link to subscribe in the menu up above).

If you have a story of your own you’d like to share, I’d love to hear from you.

You can email me directly, comment below, reach out on LinkedIn – reach out in whatever way works best for you!

Until then, thank you for being here.

Thank you for reading.

And thank you for continuing to fight – for yourself, your family, your child, or your future.

So much love,

Lauren | Bibbidi Bobbidi Bendy