About Bibbidi Bobbidi Bendy
Hi, I’m Lauren—artist, advocate, and lover of all things whimsical and magical. With a flair for storytelling and a history of working, performing, and living at The Most Magical Place on Earth, I take to this blog as a diary of life post pixie dust—on a new journey: one rooted in advocacy, clinical research, and the fight to help secure the first FDA-approved treatment for symptom management in patients with Ehlers-Danlos Syndrome.
This blog is where I blend magic, medicine, and meaning through art, poetry, clinical trial updates, interviews and guest blog posts from readers like you- with unfiltered reflections on life with a body that doesn’t follow the rules.
After a lifetime of unexplained and seemingly unconnected symptoms that only worsened with time, I was finally diagnosed with a cluster of rare conditions that brought long-overdue clarity. In the process of uncovering what’s really been going on in my body, I’ve started to learn how to treat myself with compassion—and a whole lot of curiosity.
Bibbidi Bobbidi Bendy is part advocacy, part diary, part resource guide—created for anyone who’s ever felt dismissed, misunderstood, or made fun of for describing their pain. If you love magic and mayhem, if you’re a fellow zebra, a curious ally, a parent, a partner, or just someone who loves a good interconnected story—you’re welcome here.
Let’s create, advocate, and untangle the truth together—one brushstroke, one blog post, one knotted ball of yarn, and one brave moment at a time.
