Bibbidi Bobbidi Bendy
Documenting the Diagnosis, the Detours, and the Dreams – because life is about so much more than just surviving.
Category: Uncategorized
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Hola! Soy Lauren Today’s Food Allergy Fact is about, you guessed it… SOY. When you think of soy, you might picture tofu, soy milk, or edamame. But the truth is: soy is sneaky. Soy is used in so many packaged foods. From baked goods to protein bars, soy can pop up where you least expect it. Many…
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Two and a hald years since my last hospital stay (minus outpatient procedures).One year since diagnosis. So much to reflect on in the last year. Where do I start? Fifteen months ago, I walked into a JW Marriott lobby, preparing to check in, carrying confusion, pain, and decades of unanswered questions. I walked out carrying…
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Coming Soon!! ⸻ Every diagnosis has a backstory. And never… I mean NEVER – is it ever simple, right? So often our story starts long before any diagnosis ever arrives. Before the label, before the categorization, before the insurance approvals. Before acknowledgement, before acceptance. Before understanding. Sometimes our journey begins in hospital hallways, bathroom floors,…
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Today, I had the privilege of meeting with my mentor for the first time—through the Rare Disease Legislative Advocates Mentorship Program. This initiative is put together by the EveryLife Foundation. Our meeting stirred something powerful within me. I’ve been brewing. I’ve been trying to find the push to begin my next passion project—and our conversation…
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Today I spent some time focusing on how to condense my most recent poem to be within admissible guidelines for an artist competition. The Every Life Foundation hosts an artistry contest for patients and families of those with rare diseases. Applicants can submit visual art, music, poetry, and more. I was absolutely wowed by the…
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By Lauren Hand While I wait for relief—I create.Not to escape the pain,but to give it a name. Because if I can shape it,maybe someone else will finally see it. Understand it. Because if I can delight them-wow them-maybe I’m less of a burden.Maybe I can at least distract themfrom just how much I’m always…
