Bibbidi Bobbidi Bendy is a space for rare and undiagnosed disease warriors to come together. Here you can come as you are, find what you need, and leave a little lighter.
Hi, I’m Lauren. Magic-maker turned warrior and advocate- I spend most of my time with my dog, Bibbidi, vacuuming up fur or paddle boarding in a nearby lake. Each day is different, but we like it that way.
- Daily Food Allergy Facts -Day 1Hola! Soy Lauren Today’s Food Allergy Fact is about, you guessed it… SOY. When you think of soy, you might picture tofu,… Read more: Daily Food Allergy Facts -Day 1
- It’s All in Your Head!
- Such a great post from How2NotDie
- How One Woman Unlocked My Rare Disease Diagnosis In A JW MarriottTwo and a hald years since my last hospital stay (minus outpatient procedures).One year since diagnosis. So much to reflect on… Read more: How One Woman Unlocked My Rare Disease Diagnosis In A JW Marriott
- Coming Soon: A Parent’s Fight for Their ChildComing Soon!! ⸻ Every diagnosis has a backstory. And never… I mean NEVER – is it ever simple, right? So often… Read more: Coming Soon: A Parent’s Fight for Their Child
- Meeting My Mentor: Turning Passion Into Purpose for the Rare Disease CommunityToday, I had the privilege of meeting with my mentor for the first time—through the Rare Disease Legislative Advocates Mentorship Program.… Read more: Meeting My Mentor: Turning Passion Into Purpose for the Rare Disease Community
